Join me on my journey! Raising awareness about Dercum's, Lipedema, hEDS, and BCHE Deficiency
For years, I believed my health struggles were all about food. And to be fair, food was a huge part of it. Back in 2017 I discovered a variant on the BCHE gene that causes a Butrylcholinesterase Deficiency and I found that with my particular variant, I may struggle with the alkaloids in nightshades, as …
The question I get asked the most is: “What actually helps Dercum’s?” The truth is—there isn’t just one thing. It’s not one diet.Not one therapy.Not one supplement. → It’s everything working together. And just as important… → Learning what isn’t helping. A Quick Note on My Health I’m not just managing Dercum’s. I’m also navigating: …
It took 27 years for me to be diagnosed with a disease most doctors have never even heard of. And I was told just last year…“Just exercise more.” Today is Dercum’s Disease Awareness Day (April 4th). It took 27 years for me to be diagnosed. Twenty. Seven. Years. That’s not okay.And that’s exactly why awareness …