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The Healing Blossom
Join me on my healing journey!
I’m raising awareness about very underdiagnosed medical conditions.
I’m excited to share that my FDRS presentation from the March conference is officially on YouTube. This presentation meant a lot to me because I got to share a brief snippet of my story — the long journey through Lipedema, chronic pain, MCAS, SPS, hypermobility, oxalates, and more. In the talk I listed all the disorders I’ve been diagnosed with… although one more was added later: Dercum’s Disease.![]()
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But what most people don’t know is what it took just to get to that stage.![]()
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For weeks I focused on preparing and resting as much as possible. Good sleep is the only thing that keeps my mind clear — without it, I lose my words, something I’ve struggled with all my life. I wanted to show up present, grounded, and able to communicate the story I’ve waited years to tell.![]()
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Then, days before my trip, my 4-year-old created a “booby trap” in our walk-in pantry. I fell hard — ribs, hip, knee — right onto the art cart and a puddle of glue. I squeezed in an appointment with my osteopathic manual therapist, right before my flight, but she warned me I’d be in pain. She was right. The flight was brutal, and I sat in intense pain the entire way.![]()
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When I finally got to my hotel, I began feeling sick and struggling to breathe. Later, I found black mold in the room. At midnight I begged to switch rooms, and the only option was one with no curtains, right next to a bright intersection. I took it anyway. I didn’t sleep at all that night.![]()
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The next day they moved me again, but that’s when oxalate dumping started — the ribs I injured began releasing gritty crystals through my skin, causing intense itching. Another mostly sleepless night.![]()
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By the morning of my presentation, I was exhausted, in pain, itchy, and running on almost no sleep… but I still showed up and delivered. Not perfectly — there are things I would’ve said differently if I’d had rest — but with the most heart and truth I could give in that moment.![]()
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Chronic illness doesn’t pause for important days. We carry it with us into every space — even onto stages. And sometimes simply showing up is the victory.![]()
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Here is my FDRS presentation. Thank you to everyone who’s walked beside me on this healing journey. 🌿💛 Link in comments
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Five board members from the American Lipedema Association (ALA) will be representing patients on the global stage at the Lipedema World Congress in Rome, Italy next week! 🇮🇹💙![]()
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This incredible event, hosted by the Lipedema World Alliance, brings together experts and patient advocates from around the world to share the latest research, treatment advances, and strategies to better support our community. 🙌![]()
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You can follow along with the ALA’s daily updates from Rome by following their social pages and watching these hashtags:![]()
#LipedemaWorldCongress #AmericanLipedemaAssociation![]()
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The ALA continues to lead powerful advocacy efforts — including the push for ICD-10 codes for Lipedema — ensuring our voices are heard where it matters most.![]()
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I’m honored to be a proud member of this inspiring organization, united in the mission to raise awareness, promote research, and empower every woman living with lipedema. 💪💜![]()
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👉 Follow the American Lipedema Association for updates and join the movement to advance lipedema awareness and care!
I was born in 1976, a victim of the poor dietary guidelines. Are you a victim too? I tried to eat healthy, but the guidlines were all wrong.