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The Healing Blossom
Join me on my healing journey!
I’m raising awareness about very underdiagnosed medical conditions.
Since June is Lipedema Awareness Month—and Dercum’s Disease is on the same spectrum—I want to take a moment to raise awareness about Dercum’s.![]()
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I was just diagnosed with Dercum’s… 25 years after symptoms began.![]()
Why the delay?![]()
1️⃣ Most doctors have never heard of it.![]()
2️⃣ I didn’t realize the symptoms I was experiencing were connected.![]()
3️⃣ I manage my pain well—so on the outside, I looked “fine.” But that doesn’t mean I wasn’t in pain. I just found my triggers and worked hard to avoid them. My flares are debilitating.![]()
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Eight years ago, when these lipomas started growing all over, I went to my doctor. She said, “They’re just lipomas, and lipomas don’t hurt.”![]()
I told her they did hurt. That it was hard to get out of bed. That I needed multiple naps a day—and would take more if I didn’t have two kids to care for. My brain fog is awful.![]()
She brushed it off: “Well, at least you can get out of bed. People with ME can’t. It’s just postpartum hormones. It’ll get better.”![]()
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It didn’t.![]()
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More people need to know about Dercum’s.![]()
Eight years ago, when I first learned about Lipedema, no doctor I spoke to had ever heard of it. Today, some finally have.![]()
But Dercum’s? Still almost zero recognition.![]()
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Let’s change that. 🧡💜 Please SHARE![]()
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#DercumsDisease #LipedemaAwareness #ChronicPain #RareDisease #TheHealingBlossom #InvisibleIllness #MedicalGaslighting #WomensHealth
Yep, I broke it. I can't eat tolerate 1 gram of sugar without swelling. This is why one cheat isn't worth it. Teaching my kids moderation, and the importance of fats and proteins.It's far easier to prevent obesity and other chronic diseases than it is to reverse them.![]()
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One you have a broken metabolism, your body can no longer handle sugars and starches—and that means you have no choice but to restrict them.![]()
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But what if we never let it get that far?![]()
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For children, they just need a healthy diet. Butter, whole milk. Adequate protein and fat. Less sugar.![]()
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Prevention starts young. Stop disease before it starts.
Lipedema is not the same as obesity.![]()
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It’s a chronic condition that causes pain, easy bruising, and fat accumulation that is resistant to nutritional intervention or physical activity. Understanding these differences helps reduce stigma and leads to earlier diagnosis, better care, and more research.![]()
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Awareness doesn’t end this month. Let’s keep the conversation going and help more people get the answers they need. bit.ly/4kb5zIO
What is Dercum’s Disease?![]()
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Dercum’s disease is a rare and painful disorder characterized by multiple fatty growths known as lipomas. These growths can press on nearby nerves, leading to chronic, often debilitating pain.![]()
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It primarily affects adults, with women more commonly impacted than men. Because it’s rare and frequently misunderstood, many go years without a proper diagnosis.![]()
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🧡 Orange is the awareness color for Dercum’s disease. Let’s help shine a light on this condition and support those who live with it every day.![]()
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#dercumsdisease #dercumsdiseaseawareness